We hope everyone has been enjoying their Spring.
We have been having a great time spending time together as a family and just staying busy with school, sports, and other family activities. Kevin has been back enjoying work and we’ve been doing our best to make the rounds to reconnect with family and friends and look forward to continuing that over the summer.
We had a great response to the Great Strides Cystic Fibrosis walk this year. Although we were planning to celebrate as a team at the event, our family was not able to join due to some additional medical complications that needed to be addressed. Thanks so much to all of you that did attend the walk as well as your financial support of the charity and your continued prayers of support. We hope to celebrate next year as we turn the corner of 2 years in our new post transplant life.
Many of you may be aware that Kevin has been provided with a new challenge to face as part of his journey. In May, the medical team identified a mass in his sinus and behind his eye that had to be surgically removed on short notice. The surgery went well and he is still recovering but planning to return to work next week. After studying the tissue that was removed, it was determined that Kevin has PTLD in his Sinus, Liver, and Colon. PTLD is a form of Lymphoma that transplant patients are susceptible to given the lowering of their immune system and their inability to protect themselves from the virus that causes this type of Cancer.
The prognosis is very positive and the doctors call it a “treatable and curable” disease. We are hanging our hat and our hearts on to that prognosis with a very positive outlook. Kevin has returned to the gym for training as well as started a 12-18 week course of Chemotherapy. In all the transplant cases that we have been exposed to, it appears that most, if not all, lung transplant patients have a “bump in the road” in their first year of transplant and that is exactly how we are viewing this….just another bump in the road. Let’s get past the bump and get on with the living!
Thanks again for all your support and the many ways that you have provided it. It has lifted us up along the way and it always comes at the right time and most of all we appreciate YOU for being part of our lives.